11 Comments
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Janice Walton's avatar

I couldn’t change the course of his dementia, but maybe my husband could have remained home a while longer if we had been better informed and prepared.

Sally French Wessely's avatar

This is so informative! Thank you. I’m saving this for future reference.

Janice Walton's avatar

Hi Sally, I sure wish I had known then what I know now.

Susannah Morlock's avatar

Janice, thank you so ,uch for sharing this information. I am sorry you, Dan, and your family had to go through such a traumatic experience.

Janice Walton's avatar

Hi Susannah, Thank you so much. If there is a positive to all of this, it is the chance to share what I learned with others and maybe make it a little easier for them.

Cali Bird's avatar

This must have been so hard for you. But at each turn you made the best decision you could with the knowledge you had in that moment. Lots of love 💞

Janice Walton's avatar

Hi Cali, that is what I've come to understand. I can look back and see things I could have done differently, but it was my very best at the time.

Witsd's avatar
3hEdited

Thank you for sharing these ideas. Your experience sounds so difficult. I’m concerned that my husband may be showing early signs of cognitive impairment. If he refuses to seek an evaluation, and feels there’s “nothing to do for it anyway”, what can I do but observe?

Janice Walton's avatar

Hi, there is some natural memory loss as we age, so that might be all you are seeing. However, you might want to document your concerns so that, if or when it's necessary, you have written examples. My husband didn't think he had a problem either, and we couldn't get him to go to the doctor, so we had to work around him. I've read there are new possible treatment options - especially for slowing down the process, but I don't know anything about them.

Susan Kuhl's avatar

Thank you so much. I have 2 knees that need to be replaced because they are bone on bone. I want someone who would consider just a little IV drug so that I don’t need general. I am very apprehensive about general. The last thing any of us need is to be confused that then drags on to something else.

You did the best you could do with the information you knew at the time. When you know better, you do differently.

You were kind to share with all of us.

Sharron Bassano's avatar

Such an important issue, Janice. And we must remember to advocate for ourselves as well. When I was young, I would go to a doctor with a problem, she would treat me and, boom! I would heal. Not any more. Increasingly I find I am none the wiser or better when I leave my doctor's office. There are so many chronic, incurable conditions simply due to old age that are not adequately addressed. It is disheartening.